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Rare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at Sanford

for
Rare Disorders, Undiagnosed Disorders,
Location: Sioux Falls SD
Sponsor: Sanford Health

Sex: All

Age: 0+

Code: NCT01793168

Recruiting

Prospective Multisite Study of Quality of Life in Pediatric Intestinal Failure

for
Pediatric Intestinal Failure
Location: Boston MA, Hartford CT, Durham NC, Toronto,
Sponsor: Boston Children's Hospital

Sex: All

Age: 0 - 25

Code: NCT04629014

Recruiting

KiteLock 4% EDTA Lock Solution for the Prevention of Occlusions in Children With Intestinal Failure

for
Pediatric Intestinal Failure
Location: Boston MA, New York NY, Durham NC, Columbus OH,
Sponsor: SterileCare Inc.

Sex: All

Age: 0 - 18

Code: NCT05879835

Recruiting

A Study of NST-6179 in Subjects With Intestinal Failure-Associated Liver Disease (IFALD).

for
Intestinal Failure Associated Liver Disease
Location: Boston MA, New York NY, Durham NC, Cleveland OH,
Sponsor: NorthSea Therapeutics B.V.

Sex: All

Age: 16+

Code: NCT05919680

Phase2, Recruiting

AI-driven Total Parenteral Nutrition Platform

for
Intestinal Failure
Location: Stanford CA
Sponsor: Takeoff41, Inc.

Sex: All

Age: 0

Code: NCT07414576

Recruiting

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Weaning is Winning? (WeWin Study)

for
Intestinal Failure, Parenteral Nutrition
Location: Toronto
Sponsor: The Hospital for Sick Children

Sex: All

Age: 0 - 18

Code: NCT06525753

Recruiting

Study of Choline Chloride for Injection in Adolescent and Adult Patients With Intestinal Failure Receiving Long Term Parenteral Support

for
Choline Deficiency, Liver Injury
Location: Durham NC, Miami Lakes FL, Cleveland OH, Chicago IL,
Sponsor: Protara Therapeutics

Sex: All

Age: 12+

Code: NCT06910943

Phase2, Phase3, Recruiting
New

Tier Palliative Care For Patients With Advanced Heart Failure or Cancer

for
Advanced Heart Failure,
Location: Astoria NY, New York NY
Sponsor: Icahn School of Medicine at Mount Sinai

Sex: All

Age: 18+

Code: NCT07391956

Recruiting

The Endoscopic Assesment of Intestinal Grafts

for
Transplant; Intestine, Transplant; Complication, Rejection,
Location: Washington DC
Sponsor: Sahlgrenska University Hospital

Sex: All

Age: 0+

Code: NCT03444675

Recruiting

Enhanced Nutritional Optimization in LVAD Trial

for
Heart Failure, Gut Microbiome, Nutritional Deficiency
Location: New York NY
Sponsor: Columbia University

Sex: All

Age: 18+

Code: NCT05655910

Recruiting

Human/Machine Interface: What the HeartMate 3 ® Device Tells Us About the Future

for
LVAD, Frailty, GI Bleed, Right Heart Failure, Infections,
Location: Gainesville FL, Chicago IL, Rochester MN,
Sponsor: International Consortium of Circulatory Assist Clinicians

Sex: All

Age: 18 - 70+

Code: NCT06039176

Recruiting

Intestinal Microbiota Transplantation in Patients With Chronic Heart Failure

for
Chronic Heart Failure
Location: New York NY
Sponsor: Melana Yuzefpolskaya, MD

Sex: All

Age: 18+

Code: NCT07490054

Phase1, Recruiting

Expanded Access Protocol Using CD3+/CD19+ Depleted PBSC

for
Leukemia, Inborn Errors of Metabolism,
Location: Philadelphia PA
Sponsor: Children's Hospital of Philadelphia

Sex: All

Age: 0 - 30

Code: NCT02356653

Early_phase1, Recruiting

Abdominal Wall Transplant

for
Transplant;Failure,Kidney, Transplant; Failure, Liver,
Location: Durham NC
Sponsor: Duke University

Sex: All

Age: 18 - 65

Code: NCT03310905

Recruiting

Drug Interaction Potential of Pro-Inflammatory Conditions

for
Diabetes Mellitus, Type 2, End Stage Renal Disease,
Location: Indianapolis IN
Sponsor: Indiana University

Sex: All

Age: 12 - 70+

Code: NCT07360938

Recruiting

At-Home Bowel Stimulation

for
Post-Operative Ileus (POI)
Location: Weston FL
Sponsor: The Cleveland Clinic

Sex: All

Age: 18+

Code: NCT07574437

Recruiting

A Study to Investigate the Efficacy and Safety of Apraglutide Compared With Placebo in Adult Participants With Short Bowel Syndrome Associated With Intestinal Failure (SBS-IF)

for
Short Bowel Syndrome (SBS),
Location: Naples FL
Sponsor: VectivBio AG

Sex: All

Age: 18+

Code: NCT07742735

Phase3, Recruiting