Recruiting

Observational Study

Sponsor:

Stanford University

Code:

NCT01336790

Conditions

Lymphedema

Eligibility Criteria

Sex: All

Age: 0+

Healthy Volunteers: Not accepted

Study Details

Brief summary:

The purpose of the International Lymphatic Disease and Lymphedema Patient Registry and Biorepository is to collect health information in order to study the disease classification, natural history, and impact of Lymphatic Disease, Lymphedema and Related Disorders and its treatments and medical outcomes.

Conditions

Lymphedema

Study ID

NCT01336790

Start date

Mar, 2009

Status verified date

Nov, 2023

Completion date

Dec, 2025

Anticipated

Primary completion date

Dec, 2024

Anticipated

Eligibility Criteria

Eligibility Criteria

Sex: All

Age: 0+

Healthy Volunteers: Not accepted

Inclusion Criteria:

  • Presence of lymphatic disease

Exclusion Criteria:

  • None

Study Design

Enrollment

5000 participants

Anticipated

Interventions and Outcome Measures

Primary outcome measure

  • prevalence of lymphatic disease [ Time Frame: 15 years ]

Central Contacts and Locations

Central contacts

Stanley Rockson, MD

(650) 7231396

Locations

Stanford University School of Medicine

Recruiting

Stanford, California, United States, 94305

Principal Investigator:

Stanley G Rockson

More Information

Sponsor

Stanford University

Last update posted

Nov 22, 2023

Last verified

Nov, 2023

Keywords

  • Lymphatic disease
  • Lymphedema
  • Lymphangiomatosis
  • Lymphangiectasia
  • Protein-losing enteropathy
  • Vascular Anomalies

Trial information was received from ClinicalTrials.gov and was last updated on 2026-09-10. This information was provided to ClinicalTrials.gov by Stanford University on 2023-11-22.