Recruiting

Observational Study

Sponsor:

Cancer Support Community, Research and Training Institute, Philadelphia

Code:

NCT02333604

Conditions

Neoplasms

Cancer

Caregiver

Eligibility Criteria

Sex: All

Age: 18+

Healthy Volunteers: Accepted

Study Details

Brief summary:

The Cancer Experience Registry®: An Online Survey Research Study to Understand the Experiences of Those Impacted By a Cancer Diagnosis. The Registry is a web-based platform to distribute cross-sectional and longitudinal surveys. Study surveys are designed based on input from advisor experts, including patients and caregivers, and focus on the social, emotional, physical, financial and decision-making experiences of those who have been diagnosed with cancer and their caregivers. Findings contribute toward enhancing care for patients, survivors and caregivers via programming and policy initiatives.

Conditions

Neoplasms

Cancer

Caregiver

Study ID

NCT02333604

Start date

Mar, 2013

Status verified date

Apr, 2026

Completion date

Dec, 2035

Anticipated

Primary completion date

Jan, 2035

Anticipated

Eligibility Criteria

Eligibility Criteria

Sex: All

Age: 18+

Healthy Volunteers: Accepted

Inclusion criteria:

  • Have received a cancer diagnosis or have been a family caregiver or informal caregiver (i.e., a relative or friend) for someone diagnosed with cancer
  • Live in United States, a US territory, or Canada
  • Able to read and understand English

Exclusion criteria:

  • None

Study Design

Enrollment

15000 participants

Anticipated

Interventions and Outcome Measures

Primary outcome measure

  • Self-reported quality of life measures [ Time Frame: 7 days ]

Central Contacts and Locations

Locations

Cancer Support Community Research & Training Institute

Recruiting

Washington D.C., District of Columbia, United States, 20015

Contacts

More Information

Sponsor

Cancer Support Community, Research and Training Institute, Philadelphia

Last update posted

Apr 23, 2026

Last verified

Apr, 2026

Keywords

  • cancer
  • cancer survivorship
  • psychosocial needs
  • cancer experience
  • acute myelogenous leukemia
  • breast cancer
  • breast cancer, metastatic
  • chronic lymphocytic leukemia
  • chronic myeloid leukemia
  • liver cancer
  • lung cancer
  • melanoma
  • multiple myeloma
  • myelodysplastic syndrome
  • ovarian cancer
  • prostate cancer
  • stomach cancer
  • bladder cancer
  • colorectal cancer
  • patient insights

Trial information was received from ClinicalTrials.gov and was last updated on 2026-09-10. This information was provided to ClinicalTrials.gov by Cancer Support Community, Research and Training Institute, Philadelphia on 2026-04-23.