Recruiting

Desmoplastic Sarcoma

Sponsor:

Memorial Sloan Kettering Cancer Center

Code:

NCT04690374

Conditions

Desmoplastic Small Round Cell Tumor

Eligibility Criteria

Sex: All

Age: 0+

Healthy Volunteers: Not accepted

Study Details

Brief summary:

This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease.

The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.

Conditions

Desmoplastic Small Round Cell Tumor

Study ID

NCT04690374

Start date

Dec 22, 2020

Status verified date

Jan, 2026

Completion date

Dec, 2027

Anticipated

Primary completion date

Dec, 2027

Anticipated

Eligibility Criteria

Eligibility Criteria

Sex: All

Age: 0+

Healthy Volunteers: Not accepted

Inclusion Criteria:

  • Participants must have a diagnosis of desmoplastic small round cell tumor
  • Participants may be of any age as long as the appropriate consent and assent may be obtained
  • Willing to provide historical and longitudinal clinical data

Exclusion Criteria:

  • Participant unwilling to provide consent or share historical and longitudinal clinical data

Study Design

Enrollment

250 participants

Anticipated

Interventions and Outcome Measures

Arms

Desmoplastic small round cell tumor (DSRCT)

Collect historical/longitudinal clinical, radiographic and molecular features of DSRCT patients as documented in medical records to improve knowledge about DSRCT

Primary outcome measure

  • Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor [ Time Frame: 7 years ]

Central Contacts and Locations

Central contacts

Emily Slotkin, MD

1-833-675-5437slotkine@mskcc.org

Shakeel Modak, MD

1-833-675-5437

Locations

Memorial Sloan Kettering Cancer Center (All Protocol Activities)

Recruiting

New York, New York, United States, 10065

Contacts

Emily Slotkin, MD

833-675-5437

Shakeel Modak, MD

1-833-675-5437

Principal Investigator:

Emily Slotkin, MD

More Information

Sponsor

Memorial Sloan Kettering Cancer Center

Last update posted

Jan 12, 2026

Last verified

Jan, 2026

Keywords

  • Patient registry
  • 20-551

Trial information was received from ClinicalTrials.gov and was last updated on 2026-09-10. This information was provided to ClinicalTrials.gov by Memorial Sloan Kettering Cancer Center on 2026-01-12.