Recruiting

Observational Study

Sponsor:

Virginia Commonwealth University

Code:

NCT05434572

Conditions

Neuromuscular Diseases

Neuromuscular Disorder

Neuromuscular Diseases in Children

Eligibility Criteria

Sex: All

Age: 0 - 70+

Healthy Volunteers: Accepted

Study Details

Brief summary:

The purpose of this research repository is to collect, store, and share with other researchers any tissues that subjects with all types of neuromuscular disease are willing to donate. These samples will be stored at Virginia Commonwealth University (VCU) and will be used for future research with this population.

Conditions

Neuromuscular Diseases

Neuromuscular Disorder

Neuromuscular Diseases in Children

Study ID

NCT05434572

Start date

Mar 17, 2021

Status verified date

Jul, 2026

Completion date

Feb, 2030

Anticipated

Primary completion date

Jan, 2030

Anticipated

Eligibility Criteria

Eligibility Criteria

Sex: All

Age: 0 - 70+

Healthy Volunteers: Accepted

Inclusion Criteria:

  • Willing and able to give informed consent
  • Positive diagnosis or suspected diagnosis of neuromuscular disease, or
  • Family history of neuromuscular disease, or
  • Healthy volunteer
  • Age Neonates-75

Exclusion Criteria:

  • Unwilling to sign consent

Study Design

Enrollment

500 participants

Anticipated

Interventions and Outcome Measures

Primary outcome measure

  • To collect, store, and share with other researchers any tissues that subjects with all types of neuromuscular disease are willing to donate. [ Time Frame: Baseline ]

Central Contacts and Locations

Central contacts

Nicholas Johnson

804-628-1624nicholas.johnson@vcuhealth.org

Locations

Virginia Commonwealth University

Recruiting

Richmond, Virginia, United States, 23298

Contacts

Carino Jennings

804-828-1271carino.garza@vcuhealth.org

Principal Investigator:

Nicholas E. Johnson, MD

More Information

Sponsor

Virginia Commonwealth University

Last update posted

Jul 6, 2026

Last verified

Jul, 2026

Keywords

  • Neuromuscular
  • Research Repository
  • Biobank
  • Neuromuscular Disorder

Trial information was received from ClinicalTrials.gov and was last updated on 2026-09-10. This information was provided to ClinicalTrials.gov by Virginia Commonwealth University on 2026-07-06.