Recruiting

Observational Study

Sponsor:

Myasthenia Gravis Foundation of America

Code:

NCT06617741

Conditions

Myasthaenia Gravis

Myasthenia

Myasthenia Gravis Associated with Thymoma

Myasthenia Gravis Crisis

Myasthenia Gravis Exacerbations

Eligibility Criteria

Sex: All

Age: 18+

Healthy Volunteers: Not accepted

Study Details

Brief summary:

The goal of this observational study is to learn about the experiences of people living with Myasthenia Gravis (MG) in the United States. The main questions it aims to answer are:

  • How and when are people with MG diagnosed?
  • What are the most common symptoms associated with MG?
  • What treatments are being used to treat MG?
  • What are the impacts of MG on activities of daily living, employment and quality of life?
  • What are the experiences with exacerbation, hospitalization and healthcare access for people with MG? Participants will answer a survey to enroll in the study, and be invited to fill out an update survey twice a year.

Conditions

Myasthaenia Gravis

Myasthenia

Myasthenia Gravis Associated with Thymoma

Myasthenia Gravis Crisis

Myasthenia Gravis Exacerbations

Study ID

NCT06617741

Start date

Oct 12, 2013

Status verified date

Sep, 2024

Completion date

Sep 19, 2029

Anticipated

Primary completion date

Sep 19, 2029

Anticipated

Eligibility Criteria

Eligibility Criteria

Sex: All

Age: 18+

Healthy Volunteers: Not accepted

Inclusion Criteria:

  • age over 18
  • positive MG diagnosis

Exclusion Criteria:

  • age under 18
  • misdiagnosed with MG

Study Design

Enrollment

3800 participants

Anticipated

Interventions and Outcome Measures

Arms

Participants

Those with Myasthenia Gravis

Primary outcome measure

  • Diagnosis of MG [ Time Frame: At enrollment ]

Central Contacts and Locations

Central contacts

National Director, Patient Registry

8005415454gmvalo@myasthenia.org

Locations

Myasthenia Gravis Foundation of America

Recruiting

Westborough, Massachusetts, United States, 01581

Contacts

National Director, Patient Registry

800-541-5454mgfa@myasthenia.org

More Information

Sponsor

Myasthenia Gravis Foundation of America

Last update posted

Sep 27, 2024

Last verified

Sep, 2024

Keywords

  • myasthenia
  • patient registry
  • MGFA
  • Myasthenia Gravis Foundation of America
  • myasthenia gravis

Trial information was received from ClinicalTrials.gov and was last updated on 2026-09-10. This information was provided to ClinicalTrials.gov by Myasthenia Gravis Foundation of America on 2024-09-27.